Know Your Rights NYS CAREGIVER ADVISE, RECORD AND ENABLE (CARE) ACT The CARE Act requires that during a hospital stay, patients have the right to designate a caregiver who will help them after they are discharged. family child care home provides care to six or fewer children in a private home, with a child to caregiver ratio of 6:1 for (1) children less than school age (with no more than two children under 18 months old) and (2) three school-age children. While there is no federal statue stating that the adult child must be the sole caregiver, some states are more lenient than others. Select a place to store the file where you can grab it quickly in an emergency. Homemakers: Individuals who help with light house-keeping tasks. They can grocery shop, do laundry, and prepare meals. Additional Resources for caregivers in New York State. Year Published: 2023. Home Alone AllianceSM These How-To videos provide instruction to family caregivers on specific medical/nursing tasks. 59 07 MEDICARE AND MEDICAID Pg. Specific events that occurred during the 2-year period that would have resulted in nursing home placement if the adult child were not providing care should also be recorded. The right to be trained in how to provide necessary care. These calendars would be a good place to list appointments, as well, so that everyone involved is aware of critical dates. Proof Care was Provided and Prevented Nursing Home Admission NYSDOH, its affiliates or agents, and any other parties involved in the preparation or publication of this book are not responsible for errors or omissions in information provided in this book or any actions resulting from the use of such information. WHICH OF THE FOLLOWING WOULD HELP YOU? EISEP also offers respite services, which give temporary breaks from caregiving duties. Program standards. Offer emotional support and encouragement. Be ready to tell the doctor exactly what you need at each appointment (information, referrals to care, refills or new drug prescriptions, etc.). APS workers develop service plans for eligible clients to address abuse, neglect, financial exploitation, or unmet essential needs of adults. Insurance Information Include copies of insurance cards for commercial insurance or Medicare/Medicaid/VA benefits, prescription drug coverage, dental insurance, vision insurance, and/or long-term care insurance. 11, NYS CAREGIVER GUIDE Impact of Caregiving As a caregiver, you are not alone. Be clear about ways they might be able to help. Using a machine learning data analysis, we determined the following key facts about child caregiver job descriptions: The average child caregiver job description intro is about 146 words; The responsibilities section contains an average of 7 bullets points; The requirements section contains an average of 12 bullets points Always store this file in the same place, and update it as often as possible. This can be a great way to keep everyone up to date and make sure that care needs are covered. Conversely, under the caregiver child exemption, a caregiver is an adult child who lived in the parental home and cared for them for at least two years before the parent moved to a nursing home or assisted living facility. Palliative care can be provided at any time during a serious illness and can be provided in any setting. Please mail proof, along with completed questionnaire or jury summons to: Queens Division of Jurors. Office - (718) 262-7200. This is not a structured class. Department of Veterans Affairs (VA): A United States department that provides patient care, veterans benefits, and other services to veterans of the U.S. armed forces and their families. Medigap Medicare Supplemental Insurance (Medigap) policies are sold by private insurance companies and can help pay some of the health care costs that original Medicare doesnt cover, like copayments, coinsurance, and deductibles. Many falls can be prevented by making changes within the home. Understanding the Child Caregiver Exemption. There must be one caregiver for every 2 children under the age of 2. In-laws, stepchildren, grandchildren, and nieces and nephews do not qualify for the child caregiver exemption. Friends, family and volunteers may also be able to provide respite for a few hours at a time. Build a team of people you trust. Telehealth options can be helpful in allowing you to access healthcare from the comfort and safety of home. Fair market value is the amount the home would sell for on the open market. Furthermore, outside of the adult child caregiver exemption, there are other planning strategies, such as the lady bird deed, through which one can protect their home from Medicaids estate recovery program. The basic rules governing the child caregiver exemption are the same in all states; the adult child must live in the parents home for a minimum of 2 years immediately preceding nursing home admission and must provide a level of care during this time that delayed the need for nursing home care. Grandparents are only exempt from serving if they have documentation verifying full custody of the minor child. Advance Directives The best way to make sure that a persons health care wishes are known and honored is to use one or more of the following legal documents, sometimes referred to as Advance Directives. In New York State, there are three types of Advance Directives: Health Care Proxy: A Health Care Proxy lets a person name a health care agent they trust to make health care decisions on their behalf. Show home care staff your list of emergency contacts. Child Caregiver Requirements: A high school diploma or GED. They can also help with personal care, shopping, and household chores. If your child with autism is under the age of 21, you can designate a grandparent or another relative as a CDPAP caregiver or hire a personal assistant. Allow yourself space and the right to get angry, sad, and cry. Put the list where it is easy to access. For example, pay attention to how the person speaks and interacts with the person you support. 20, CAREGIVER EDUCATION NEW YORK STATE PAID FAMILY LEAVE ACT Beginning in January 2018, all employees in New York State became eligible for paid leave to take care of a family member with a serious health condition; care for a newborn or adopted/foster child; or any urgent matter regarding a spouse, child, domestic partner, or family member serving in the military. Telehealth may take many forms including a video call with a doctor to discuss symptoms or treatment options; or the use of technology to remotely monitor and collect health data. The education needed to be a child caregiver is normally a bachelor's degree. A great opportunity to meet other parents and caretakers. Pass a criminal conviction background check. New York is also an exception, as the state will be implementing a 30-month look back rule no earlier than March 31, 2024 for Medicaid long-term home and community based services. Caregivers may purchase annual certification training for $59 or $79. Home care services are provided by Certified Home Health Agencies (CHHAs) and Licensed Home Care Service Agencies (LHCSAs). You can also visit www.nyconnects.ny.gov to find caregiver training resources near you. Personal care aides help with personal care, such as bathing, grooming, and dressing. Calendars and Schedules Think about keeping a shared calendar with family and friends helping with care. EDUCATIONAL VIDEOS The United Hospital Fund A series of videos that teach you about medication management, home safety and more: www.nextstepincare.org/videos. When others are willing to help, try to be open to accepting it. Home health aides can also grocery shop and do household chores. In some cases, connecting with the right resources and support can help make a difference. . 21, NYS CAREGIVER GUIDE Creating Your Team Teamwork is essential to caregiving. HIPAA does not require written consent, though some health care facilities do ask for the patients signature. Eat a balanced, healthy diet. There are more than . Instrumental Activities of Daily Living (IADL): Activities include preparing meals, paying bills, shopping for groceries or personal items, doing housework or laundry, or using a telephone, among others. Home Disability services Get paid as a caregiver Get paid as a caregiver for a family member Some government programs pay family or friends of people with disabilities to help with daily activities including personal care, giving medicine, cooking, cleaning, and more. DID YOU KNOW? More information is available online at: www.health.ny.gov /professionals/patients/patient_rights/molst . Basically, a child caregiver looks after the fundamental needs of children like feeding, playtime supervision, and dressing. Bathing or showering Going to the bathroom Exercise Grooming Home repair Laundry Coordinating paid service Engagement or socializing Other 27, NYS CAREGIVER GUIDE Get the Family Involved Family and friends may be able to help with care. They can grocery shop, do laundry, and prepare meals. New York State Health Insurance Information, Counseling, and Assistance Program (HIICAP): Provides free, and unbiased health insurance counseling on Medicare. The following documentation may be required: Proof of the Parent-Child Relationship NY Connects: A statewide resource that provides information and assistance; screening for available long term services and supports for all individuals, regardless of age, diagnosis, disability, or payment source; options for counseling/person centered counseling; application assistance for public benefits; and facilitated connection to community services. In order to get a Family Child Care Home license, you must: Be 18 years of age or older Attend an orientation (if you have not completed a Family Child Care Home Orientation within the last 12 months) Do Not Resuscitate Order (DNR): A DNR can be arranged with a doctor or provider before an emergency occurs. Adult Day Health Care offers medically supervised services for individuals who have a physical or mental disability. Caregiving can be a full-time responsibility, often leading to stress and health concerns for the caregiver. Social adult day services programs provide care for adults in a supervised group setting within the community. Sometimes friends and family may not know what you need. For more information about telehealth, ask the healthcare provider or insurance company about your options. Insurance There are several typeslong-term care insurance, private health care or disability insurance, and life insurancewhich may help provide a source of funds for care. Home Health Aides: Individuals who assist with daily living activities. Although child care licensing does not guarantee quality, it does set minimum health and . 28, CREATING YOUR CARE TEAM TIPS FOR DIFFICULT CONVERSATIONS: Know your purpose. Be clear on what you want to accomplish. Now, let's review basic care requirements for infants.Review the content and when you are done, click next to continue. 96 NYS CAREGIVER GUIDE health-related tasks such as taking a temperature or helping with exercises. 09 Who is a Caregiver? Home Energy Assistance Program (HEAP) This program helps low-income people pay for the cost of heating their homes. Failure to meet all of the conditions or submit all required documents can result in denial of the home transfer, or if the home has already been transferred, cause a penalty period of Medicaid ineligibility. CAREGIVER EDUCATION NEW YORK STATE PAID FAMILY LEAVE ACT Beginning in January 2018, all employees in New York State became eligible for paid leave to take care of a family member with a serious health condition; care for a newborn or adopted/foster child; or any urgent matter regarding a spouse, child, domestic partner, or family member serving . The process can take time, and its better to be enrolled in a program and add hours of care as needed. Are there Monetary Limits / Maximums to a Homes Value for the Child Caregiver Exemption? Take part in religious or spiritual activities. Child caregivers take responsibility for preparing and organizing the snacks and mealtimes for children. Skilled Nursing Facility: A healthcare facility recognized by the Centers for Medicare and Medicaid that provides long-term health care for individuals. 47 HIPAA 05 SAFETY CONCERNS Pg. Try to plan a family meeting. In some cases, the Medicaid agency may also request medical records. Children must be supervised by their grown-up at all . These Plans are approved by the New York State Department of Health to provide Medicaid managed long term care. This site is for information purposes; it is not a substitute for professional legal advice. 50, NYS CAREGIVER GUIDE Medication Management Managing medications is often part of being a caregiver. NYS CAREGIVER GUIDE. 65 Social Security Disability Insurance (SSDI) This government program provides a minimum monthly income to those younger than 65 who have a disability and have accumulated enough work credits throughout their working life. Services may include nursing evaluation and treatment, physical therapy, and other medical care. Differing opinions about care. Preparing for these situations ensures that the person you support still receives the care they need. 80 NYS CAREGIVER GUIDE TIPS FOR STAYING ORGANIZED: Phone Numbers Keep important numbers by the telephone, including numbers for emergency services, as well as a list of the involved relatives and family, doctors, pharmacy, insurance companies, case manager, nurse, or other service providers involved in direct care. In 2023 you'll need to apply online for the Home Child Care Provider Pilot and Home Support Worker Pilots. Even if youre not quite ready to use the care options listed here, planning for the future can help lessen many of the difficult caregiving situations that arise. A Plan can provide your Medicaid home care and other long term care benefits. It is okay to allow for different styles, as long as no ones well-being is at risk. LEGAL AND FINANCIAL PLANNING. By providing care to an aging parent while residing in the parent's home, an adult child can use the Child Caregiver Exemption to transfer ownership and protect the home from the Medicaid Estate Recovery Program. This setting offers treatment for acute and chronic illness and injuries that are not serious enough to require an emergency visit. Author (s): Child Welfare Information Gateway. 84 NYS CAREGIVER GUIDE Attend to Your Own Health Needs Caregiver stress can take an emotional and physical toll. Though you may not receive the support of others on a regular basis, having a backup plan in the event of an emergency is essential. ), then they are a caregiver and must meet all caregiver requirements in the minimum standards . Learn about the disease or disability, and the symptoms and treatments, including clear definitions of the words that the health care team uses. Child/caregiver ratio does NOT include adults in care, but adults in care are counted in the capacity of the home. However, the information contained in this book should not be considered medical guidance or professional advice and should be used for educational purposes only. The more specific your request, the more likely you are to get what you need. Attempt to notify the caregiver about the patients transfer to another healthcare facility or before the patient returns to their residence. It should state that the aging parent required care, the type of care needed, the duration the care was required, that this care was provided by the adult child, and without the provided care, the parent would have required nursing home care. In addition to you and the person in need, the care team can include family, friends, doctors, social workers, and others whom you trust. ICAN: A program that assists New Yorkers with enrolling in and using managed care plans that cover longterm care services. 64 NYS CAREGIVER GUIDE Financial Planning Resources Financial resources may be available to you. Hospice care is provided through a team-based approach with doctors, nurses, social workers, and other dedicated health professionals. A caregiver is someone who may do any of the followingand more: Speak up for another person to ensure their rights and wishes are supported. Leave may be used for a mental or physical illness, injury or health condition of an employee or an employees family member. For example, they cannot check blood pressure or give someone their medication. Make notes describing the key changes in your health or the care recipients medical condition so your doctor has a clear picture of your needs during the visit. The Center Caregiver. Its important to have a file for both the person you support and yourself. 115-123) signaled the importance of strengthening these family connections by providing funding for 44, CAREGIVER EDUCATION WHICH OF THESE OPTIONS ARE RIGHT FOR YOU? Is the primary caregiver of the child because the biological or adoptive parents are unable or unwilling to serve as the primary caregiver of the minor child. Short-term rehabilitation due to injury, disability or illness. 89 New York State Resources National Resources Terms You May Encounter, 9 01 CAREGIVERS (YOU) PLAY AN IMPORTANT ROLE IN OUR SOCIETY. Make sure the information on the following pages is readily available to first responders and to you. Adult Day Health Care: A program that offers medically supervised services for individuals with physical or mental impairment. Organ Donor Authorization. Under new federal and state requirements, all caregivers and noncaregiver employees and residents age 10 or older in certified and licensed child care centers now require DCF-run background checks . Listen. Caregivers have the responsibility of caring for your child in a manner that meets your approval as well as meets the developmental needs of your child. Home Care: The term used for a range of health services that are offered in ones own home. Across the United States, millions of adults care for others. The list should include all prescription drugs, over-the-counter medications, and supplements. Palliative Care: Special care for people who have serious illnesses. Make sure the home care staff is a good fit for you and the person you support. Although caregiving can be demanding, research shows it can also be a positive experience. This is provided while the medical team also treats the illness. Ability to pass background checks and drug tests. Get seven to eight hours of sleep. Find a Medicaid planner in your area. Join a support group. When an assistant caregiver is employed to meet the required staff to child ratio, the assistant caregiver is a responsible, mature, and healthy individual at least 16 years of age. California is a notable exception, as the state has a much more lenient look back of 30-months. Reading and understanding medication labels can help you. Consumer Directed Personal Assistance Program (CDPAP): A statewide Medicaid program that provides an alternative way of receiving home care services; the individual or a person acting on the individuals behalf assumes full responsibility for hiring, training, supervising, and terminating the employment of persons providing the services. 69 Medical Orders for Life Sustaining Treatment (MOLST) Independent Consumer Advocacy Network (ICAN) Advance Directives Durable Power of Attorney Financial Planning Resources Tax Incentives Medicare Medigap Medicaid Managed Long Term Care New York State Health Insurance Information, Counseling, and Assistance Program (HIICAP) 08 PLANNING FOR THE UNEXPECTED Pg. Caregiver Advise, Record and Enable (CARE) Act: The CARE Act requires that general hospital inpatients be given an opportunity to formally identify a caregiver (i.e., a relative, partner, spouse, friend, or neighbor) who would provide post-discharge assistance. 15 Know your Rights NYS Caregiver Advise Record and Enable (CARE) Act Family and Medical Leave Act (FMLA) New York State Paid Family Leave Act New York State Paid Sick Leave 03 CREATING YOUR CARE TEAM Pg. Proof of the Caregiver Childs Residency in their Parents Home Purchase an 8-hour or 10-hour online Certified Caregiver Training course meeting the standards recommended by the Professional Association of Caregivers. Services include socialization activities, supervision and monitoring, and nutrition. These requirements help ensure your child is healthy and safe in a child care program. Wrap up. The most common race/ethnicity among child caregivers is White, which makes up 56.3% of all child caregivers. Some adult day care programs provide health services as well. New York State Department of Health (NYSDOH) has used its best efforts to ensure that the information provided in this book is accurate, timely, and useful. This care must be substantial enough to delay the senior person's relocation. 18, CAREGIVER EDUCATION UNDER THE CARE ACT HOSPITALS MUST: Provide each patient or their legal guardian with at least one chance to identify at least one caregiver prior to the patients discharge or transfer. Its never too soon to start looking at available options. For more information on assistive devices, contact The Justice Center at 800-624-4143 or online at: www.justicecenter.ny.gov/traid-program. Caregiver Action Network Watch caregivers sharing their own advice and support, along with videos that teach daily tasks such as bathing others: www.caregiveraction.org/resources/videos. Assisted Living Program: A residence that includes home care services and that may accept Medicaid. Other As you plan for your financial future, you might want to think about working with an independent, professional financial planner who will understand your individual situation. The child caregiver exception / child caretaker exemption allows seniors to transfer their primary home to their adult child who has been providing them with care. Summary. Create an account in the Permanent Residence portal to get ready. It expresses a persons wish to do without cardiopulmonary resuscitation (CPR) or other lifesaving emergency treatment. Depending on the disability or health issue of the person you support, ask the health care team about likely emergency situations and make a plan for what to do if these common issues happen. Medicare: The federal medical insurance program for individuals age 65 and older and those with certain disabilities: Medicare Part A covers hospital care Medicare Part B covers physicians and medical care Medicare Part C refers to a Medicare Advantage Plan Medicare Part D covers prescription drugs Medigap: Additional health insurance purchased from a private company to help pay for services and supports not covered by the persons original Medicare plan. 75 Get and Stay Organized 09 SEEKING SUPPORT Pg. 100 Copyright 2021 by New York State Department of Health This publication is supported by the Centers for Medicare and Medicaid Services (CMS) of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $236,569,329 with 100% funded by CMS/HHS. Over-the-counter Medications: Medicine that can be bought without a prescription. Come enjoy playtime in our program room! ONE IN FIVE AMERICANS SERVE AS A CAREGIVER. Documents in the caregiver childs name with their associated address the same as their parents primary home. Provide support with legal planning. This is not an uncommon theme in children when they live with someone who has a physical . Taking on this role often affects ones mental and physical health, social life, and interpersonal relationships. They can give or sell the home for less than fair market value without jeopardizing their long-term care Medicaid eligibility. While institutionalization encompasses Medicaid-funded nursing home care, the term is a bit misleading. By using our website, you agree to our terms of use and privacy policy. Keep an information folder in a safe and known place. 70 Medicare Medicare is the federal medical insurance program for people age 65 and over; certain younger persons with disabilities; and people with certain disabilities or diseases. In the formal discharge plan, identify: the caregiver(s), the recommended postdischarge care, and contact information for community resources to help the caregiver(s) provide care. To buy a Medigap policy, one must be enrolled in Medicare Part A and Part B. 61 Several documents help honor a persons wishes for care and personal finances should they no longer be able to make decisions. To date, the governor has expanded access to free or low cost child care for 150,000 more kids and their families, awarded nearly $1 billion in grants to nearly 6,000 child care businesses, and provided bonuses up to $1,000 for 38,000 child care professionals. Be a legal resident of the State of New . DID YOU KNOW? Planning for Care 04 COMMUNICATING WITH HEALTHCARE PROFESSIONALS Pg. . Help with activities of daily living, such as bathing, eating, or dressing. Spend time together. However, the caregivers must: 54, NYS CAREGIVER GUIDE Creating a Safe Environment The New York State Department of Health developed a downloadable Home Safety Checklist you can use to check for safety and health hazards in the home where youre going to be providing care. . Program Standards provide information on the Family Caregiver Support Program including a description of the program, federal requirements and reporting, services and unit descriptions. The right to be involved in decision-making, including hospital discharge planning and medical treatments. Equivalent amounts of FICA taxes must be withheld from caregivers' wages when their annual wages are $2,000 or more during 2016. They can also prepare meals, grocery shop, and do light housework. Having this knowledge before a crisis will help them receive the best quality care available and will help lower your own stress in an already stressful situation.